Jonesy & Amanda are always more than happy to try and help out with In A JAM, where they assist people who are having a tough time.
Recently they received the following email from Tina:
Dear Jonesy & Amanda,
My name is Kym and I’m writing to you about a little 4 year old boy called Tyler.
Tyler has a genetic disease called Metachromatic Leukodystrophy. This disease attacks the nervous system and has left him unable to talk or walk. He has no muscle tone and eats through a tube fed into his stomach.
Tyler was a normal boy until the age of 2 when this disease struck. The disease was created by a missing chromosome in his genetic system. Tyler can understand what is happening around him, he just can’t participate in anything.
Tyler has normal brain function it’s just his little body has let him down. He is wheelchair bound and is currently having respite care.
His parents Todd and Cassie don’t work as Todd recently quit his job to spend every day with Tyler as it’s believed Tyler will not survive past his 5th birthday.
Tyler is an only child and the chances of having more children are difficult as 3 out of 4 pregnancies could result in this genetic disorder.
Jonesy & Amanda please can you help, Tyler loves Batman and any time of activities the family could do together would be greatly appreciated.
Time is running out to make a difference to this family, please help me make some of these little boys’ wishes come true.
Thank you, Tina.
As you can see from the video below, Jonesy & Amanda were more than happy to do something to help brighten this brave little boys day.
Tyler’s parents would love to create some more magic memories, and you can help them by donating here
Special thanks to the following for making this all possible:
– Merlin Entertainment and their charity “Merlin’s Magic Wand”
– John Cootes Furniture – Large range, best value quality furniture
– And of course, Batman!
If you know someone In A JAM, we may be able to help them out, tell us their story below: