On Friday, Elie Eid, father and founder of charity Save Our Sons, commenced a 320km Walk from Sydney to Parliament House in Canberra, pushing his 10-year-old son, Emilio in a wheelchair.
The walk aims to raise money and awareness for Duchenne Muscular Dystrophy (DMD), a fatal condition that mostly targets boys.
DMD is characterised by an aggressive muscle degeneration that leads to the inability to walk and eventually death.
It is the number one genetic killer of young boys in the world.
Elie was not prepared to accept the fate of his son without campaigning to raise awareness.
He founded the registered charity, Save Our Sons in 2008, with the help of his team; Elie has already raised $3.5 million to help fund clinical trials in Australia, the UK and USA that allows research into finding a cure for DMD.
Jonesy & Amanda are proud ambassadors for Save Our Sons and spoke with Eli on the road today.